| |
![]() |
8/16/2001 Home Stupidity deletes the first half of the month. They're here More fearful day, nerves, trying not to think about it. Lots of work, a nice distraction. Phone call from WS and good wishes from CG and KP make me smile. I'm awful tired. I guess tomorrow I'll get plenty of sleep. 8/19/2001 Home Home after a grueling 5 hour surgery. Lots of problems with the hardware, possible esophageal tear, urologists, ent docs, etc. Everything seems to be ok, no bladder problems (although they did have problems in the O.R.) and I am eating ok, if a bit slowly. More later, must rest. 8/20/2001 Home Tiring day. Left arm is weak, and my neck is tired. Spent all day until 3 in bed, but sat up most of the afternoon. Pam made her killer Tuna Salad. The doctor says that I don't have to wear my neck brace, but I'm dubious. I am not happy with the fact that he didn't replate the old injury site, and I think that without the brace I will have more scar tissue. So, while moving around, I am wearing the brace. I also believe that I will have a better outcome of the 5 inch scar on my neck if it has pressure on it while it's healing. The other scar on my neck is hardly visible. I wore the brace for 30 days after surgery and I had a good outcome, so i figure it will be worth the suffering if I do that again. My hand coordination sucks. I think tomorrow I will get out my left hand exerciser and see about building up my strength, since I can't play. Not a bad day but I want to be better now. 8/21/2001 Home Not much progress today. Increasing weakness in my left hand has me concerned, but worse is the intermittant numbness on the left side of my face and my tongue. I try not to worry too much as I know I am prone to post-op panic attacks. Still, I am not happy about the older open graft in my neck where the plate was removed, feel that I have not gotten what I asked for, and have not much recourse. Am I going to demand that he go back in and replate the area? Hardly. I will be consulting specialists to see if this was the wisest course, and to see if the person who did the original surgery thinks that the graft is stable enough to support my head without the help of a titanium plate. Of course also I am reminded that I am precluded from donating blood for the next year or so because of the new bone graft, which was kindly donated by someone whose soul has gone elsewhere. I thank him or her for their humble donation of a tiny sliver of bone so that I may once again look both ways before crossing the street, without my arm going dead. Some day I hope that my body parts (dwindling in number yearly it would seem) will be as useful to someone else. 8/22/2001 Home Almost a week has gone by since my surgery, and I have not heard word one from my boss. DD wants me to do some work, get back on the job, so I will do a conference call tomorrow. I think that it is very typical and telling of my company to show so little compassion for one of their employees. This is, after all, a healthcare organization, supposedly committed to improving the situation of healthcare. They certainly aren't doing anything to improve mine. Several people did not get their posters. I wonder how many of the tubes I sent never arrived. This worries me but it is not a big disaster, as much as my mind wants to tell me that it is. We'll continue to promote the band and more posters will go out. Lots of health problems in the family, many, like mine, self-inflicted of a sort. Numb left arm. Must sleep. 8/23/2001 Home Did about 3 hours worth of work today. Still no word from my boss or anyone above him, either get well or get back to work. I've heard more good wishes from clients than my employer. Very sleepy in the afternoon, took a nap, checked some mail, took more nap. Watched E.R. Avoided Gary Condit. Yesterday I watched the landing. God I miss my old job. I hope Karen got 'em all on the first stick. 8/24/2001 Home Bleh. Slept most of the day, or lay staring at the wall. I don't *feel* any pain now, at all. This is where this becomes both dangerous and scary. I have had pain for much of my life. Eventually, my brain just shuts it off. But then I become tired or something, and that turns into depression. Anyone that knows me at all knows that I have dealt with chronic depression with some very bad episodes. Much of this, I think, was caused by pain (and of course, TATDML, but let's not talk about that right now). In an attempt to dig myself out of the depression, I tend to overdo. I clearly remember at this point after having this same surgery in 1998 assembling the office desk where I am now sitting. I have to be vewwy, vewwy careful (as Mike would say) to avoid doing this to myself again. A simple ping from a friend this evening brings bright light into an otherwise dismal day. Still no word from my long lost boss. By popular demand, they added another Crystal Reports class to the one I was supposed to teach next month. Some of my former clients will not be happy when they learn I am not teaching it. I'm sure MD will do a great job. 8/25/2001 Home (and out!) Stayed in bed again most of the day until about 1. Finally realized I was bored silly, which is the beginning of the "dangerous" phase of my recovery. Pam suggested that I go out, and so Mark asked if I wanted to go to Mars and Music Loft. Of course, everyone knows the answer to that, so I put on my Newport collar (which is just like a Philadelphia collar, except that it's made of rigid plastic and porous foam rather than rigid foam all around, therefore cooler) and hopped in the car, bearing a copy of my BPM&M disk. While Mark and I like the same kinds of music, he is much less familiar with the KC side of the spectrum (tending more toward Yes, which is OK too) so I thought a little of this excellent disk might stir him up. I ejected a copy of "Breakfast in America" to regale him with Pat's amazing percussion. Mark teaches a form of dancing called Round Dancing, which is like ballroom dancing except that there are cuers, sort of like square dancing. So it's ballroom type dancing and Mark tells the dancers what to do. Mark needs some new equipment, and wants to put it all in a rack. Today's mission was to look at what was available. I did sneak a few sad, longing looks at the various guitars, but they are still a little heavy for me to pick up without discomfort. Later, we went to PetSmart and bought more fish. That was about it for me. I came home, watched Mr. Roberts (yes, the WWII movie with Henry Fonda, one of my favorites) Battlebots, and rested. I wonder what is so different about me that I like these things, like Battlebots, Ham Radio and King Crimson, that are obviously mostly male dominated. I don't want to be a man, and I do like men (but I am finding out that many Battlebots, Ham Radio, and King Crimson fans are just too "out there" for me). So I am left with this strange behavior of mine. The last man I had a serious relationship with (TATDML) hated the Adrian Belew concert I dragged him to (sound familiar, guys? I should have known he was an asshole just by the mere fact that he didn't enjoy Adrian Belew). I wonder what other people think but I guess it really doesn't matter. Unless you're trying to get a date. The current book I am (re) reading is "A Deepness in the Sky" by Verner Vinge. It is about a race of Spiders and the humans that travel to try to conquer/do trade with them. And CG thinks he has spider problems. This is another Science Fiction book that I would love to write a screenplay for, the other being "Snow Crash" by Neil Stephenson. Science Fiction... just another one of those "male" things. Mom sent some 20-odd photographs of paintings she has done. Tomorrow's task, if I can sit that long, is to categorize and post them. 8/26/2001 Home Horrible day. Even though I rested most of the day, increasing weakness in my left arm has me just a little concerned. A kind ping from basically both my guitar instructors with a possible suggestion for holding the guitar. Right now, there is not enough strength in my left hand to even depress the strings. Reading diaries, I am envious of the Seattle crowd and their weekly sittings. And I *really* miss TG's smile. I feel a bit distanced from Guitar Craft, and I wonder if I'll be ready for Italy, and indeed whether I'll ever be able to attend another Beginners' circle, or even have another meeting of our own local circle. I strongly feel the need to be around Crafty people, and right now I'm kind of stranded. 8/27/2001 Home Better day today. Took a long call from a client, who seemed more interested in my surgery than solving his problem. Still no word from my boss, although I did talk to the head of human resources. Seems i can get paid part time and still collect short term disability. The nails on my left hand are getting very long. This means I haven't played my guitar in a long time. Kind of depressing. When I do pick the guitar back up, will I be starting over? Email from Scott gives me hope that our little circle will live on, and I'll be getting the help I need. I feel like I've let the Trio down, some people did not get their posters and the merch people are not as well informed as I'd like. Once again my health gets in the way of my doing a good job. I am so sick of being sick, and I'm so very sick of my health interfering with my life. I miss Bill. 8/29/2001 Home A day late, Happy Birthday, Sooz. Missed yesterday both mentally and diary-wise. I think I am depressed. I know I am depressed. It is very hard for me to do any work, I haven't turned in a time sheet for 3 weeks. I feel like crap. Part of this is the Vicodin. Last time I did this I swore up and down that I was going to write an essay about how overprescribed Vicodin is. It's so addictive, and so dangerous. I have enough work thrown my way that I could work 10 hour days and not get it done. They don't seem to understand that I've just had my neck sliced open, a disk sucked out, a hole drilled in two vertebrae, a bone graft inserted, and a metal plate screwed into the veretbrae. Not to mention the fact that everything in my neck was retracted so far they thought they tore things. Don't forget the disk compressing my spinal cord. Finally emailed my boss, telling him that I did indeed survive and I am trying to get approval from my doctor to work part time. His terse response: Thanks. Pam is out sick too, with an injured foot she can't dance or clean house. We brought a cleaning service in, three woman and a 7 year old girl. Why is this child not in school? And why am I supposed to watch this child to make sure that she does not completely destroy this non-child-resistant house? What am I going to do? 8/30/2001 Home I got a lot done today. I have given up on anyone at work understanding that I have just had major surgery. The work just keeps pouring in. Maybe it is all in my head and I am making this up. I feel like a failure. Tomorrow night is the Smokin' Granny show. I hope I can come. I am off the hook for merch, they have someone else to help. We'll see how I feel. 8/31/2001 Home and Carrboro Long day of work today, got a lot done. Made Mark take me to the ProgDay preview in Carrboro to see my fellow Triangle Circle member Dave's band Smokin Granny. Outstanding! Kind of Crimsony with a Jazz flair. Afterwards, discussed with the band the possibility of bringing CGT and/or Hanuman here to co-bill with SG. An excellent pairing for either band, with the ability to draw in a local crowd. Hoped to stay for Man on Fire but my arms are tired. Posted my usual anti-MDA admonition to Pathways, which I will repost here: If any of you guys were at the Houston show, you were introduced to Kirk, the guy that does the roadcam stuff. Kirk is a brilliant programmer. He also has muscular dystrophy, you may have noticed that he is in a wheelchair. |